On 9th February 2018, after just a couple of weeks of minor symptoms – some double vision, a slight squint and generally just a bit wobbly – Lizzie, aged 9, was diagnosed with a brain tumour. It was the eve of the half term holiday and we were about to depart for a girls holiday of a lifetime, meeting up with her Dad, Mark, in Vietnam, who was away competing in a classic car rally. Within a few hours, Mark was on a plane home. The second MRI confirmed a horrifying diagnosis, Diffuse Midline Glioma (DIPG), an inoperable brain tumour of the brainstem for which there is currently no effective treatment. DIPG affects around 25 children in the UK each year, with an average life of expectancy from diagnosis of just 9 months.